Posts
We are headed back to the CP Center in 2 weeks. Since Logen's EEG came back positive with seizures, the neuro wants to see him. As of now, we've been given liquid valium and were told to to give it(in a suppository form) and call 911 if any seizure occuring lasted 5 minutes or longer.
Not sure if the laptop will make the trip with us, but i'll certainly be updating when we get home. We are suppose to be meeting with a SLP & an OT about the CONSTANT drooling. It's becoming an issue. It STINKS. He's almost 5 and I am afraid his class mates will notice the funky odor. That, and it's just not normal for a 5 y/o to drool like this. He has enough issues as it is. We've discussed botox, it's considered 'cosmetic' if done in the face. Insurance won't cover it- if he qualified for it in the arms, hands, legs, etc then they could use the remaining in his face and not bill it. However, he doesn't.
Thats whats up with us.
Where Are You?
4 comments:
Jess,
I will be praying that you have a safe trip, and that all goes well with Logen. He is so cute. I just saw the pictures of him with that hats on the blog. Both of your babies are so gorgeous!!
Amy
Oh, Jess.....prayers going out to all of you for a safe trip!! I am with you on the drooling...it really does STINK, huh??? Not to mention how dirty Joshie's clothes get around his neck!!! Out neuro said something about prescribing something for him....it was awhile ago though & we haven't brought it up to him when we saw him last. It seems like Josh's drooling comes & goes.....UGH! Another thing to add to our list, huh??
Love ya!!
Hey, Jess, real quick comment here, but I wanted to tell you two things:
1) Link up with Jenny (Audrianna's mom) because I know that Aud was on some med for drooling and I thought she said it helped?
2) Maybe check out Botox donations? In our clinic, there is often a little bit left over after a child has the injections, and the parents will donate it (it's obviously a very sterile procedure). I know Botox is SOOO bloody expensive!
Love you and will DEFINITELY be praying about STL!
I will pray for you guys too. I hope you get some answers!!!
Post a Comment