Wednesday, October 29, 2008

Research on Service Delivery of Care to Children who have Had Strokes - Please help!

This post is intended for parents of children who have had strokes.

As a parent of a child who has had a stroke myself, I have become interested in researching the service delivery of care to children who have had strokes.

I have been provided the opportunity to complete an independent study of parents and medical professionals to determine the current state of service delivery of care and to compile recommendations for potential improvements.

In order to compile data for this study, I am requesting your participation in a short survey.
This survey is intended to be completed by the parent(s)/guardian(s) of the child and/or the medical professionals providing care to the child. If you are in contact with multiple children who have had strokes, please feel free to submit a separate survey for each child

The survey is located at:
(If you are unable to click on this link, you will need to copy and paste it to your web browser)

Please feel free to distribute this survey link to other parents and other medical professionals who work with children who have had strokes.

No identifying information will be collected about the child who had the stroke or about the person who is completing this survey. All questions are optional.
If you have any questions about this research, please feel free to contact me directly.

Thank you for your time on this effort!


Tuesday, October 28, 2008


Hi Ladies,
I wanted to post a quick update on Ben (22 months). He seemed to have hit a road block with wanting to stand (he gets soooo nervous, and just wants to sit back down). The PT has decided that it is best to go forward with the AFO's. She thinks that will help his balance, the way his feet/ankles/legs are positioned, as well as his confidence. We are going to a Rehab Dr at Children's Hospital of Milwaukee to get a second opinion before moving forward.
I have mixed emotions, but I am mostly ready for him to feel confident to move to that next level. I am concerned that he is moving a bit backwards(he had much more interest in pulling up a month or so ago).
I will let you know how it goes tomorrow.
Take Care,


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