tag:blogger.com,1999:blog-52655139141321272432024-03-13T16:00:58.791-05:00Cerebral Pirates & Princesses* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.comBlogger77125tag:blogger.com,1999:blog-5265513914132127243.post-83547628682821563222010-03-07T23:06:00.001-06:002010-03-07T23:09:32.263-06:00Need help with Equipment=) I finally updated my blog and I am in desperate need of your help! Nicky is suppose to be getting his wheelchair and walker ordered this week, these will be the ones he uses when he starts JK in Sept. Can you please view my choices and tell me what your opinion is or if you know of better equipment can you tell me what it is you use? Thank you!I hope you are all doing wonderfully, haven't Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-86778543834457260372009-09-23T11:53:00.002-05:002009-09-23T11:56:23.016-05:00Logen's DiagnosisHey Guys- I say Liz's post on my blogroll so I thought I would post this here to.Logen was diagnosed with a Mitochondrial Disease this week. Rough week going through the diagnosis thing again. :(Hope all of you are doing well. I keep meaning to check all of your blogs to see the kiddos and hear what they are doing. We've just had some not-to-great stuff going on and I haven't had a chance. Soon, * ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-23238145659476037332009-07-24T01:22:00.001-05:002009-07-24T01:23:31.391-05:00helloI take it no one checks this any more? lol it's kind of dead where is everyone and how is everyone doing?Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-90694701149034721412009-03-12T01:46:00.001-05:002009-03-12T01:47:18.702-05:00hello!where all you all? how have you all been doing? lol been a silent bunch lately, I hope that is a really good thing!!-LizUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-76787780893880009982009-01-31T04:19:00.004-06:002009-01-31T04:44:31.483-06:00Nicholaswhile things are going....that is about all I can say, sorry it's been so long but we've been mighty busy with endless illnesses in this house. Everyone seems to just keep passing bug after bug around UGH! While anyway Nicky's doctor from the asthma clinic is on mat leave and a respiratory specialist from sick kids has taken over for her, and it's a mixed blessing. After being told SINCE BIRTH Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-30522376728834266482009-01-05T14:51:00.002-06:002009-01-05T14:52:11.405-06:00Karen & JacksonHi all, just wondering if anyone ever hears from NJ Karen and how things are going with her. Darts to BBC for making everyone disappear!Dawnhttp://www.blogger.com/profile/14600361913851978373noreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-66627521067677878602008-12-05T13:41:00.002-06:002008-12-05T13:43:07.465-06:00DESPERATE NEED OF PRAYERSLogen is in DESPERATE need of prayers. I am in no shape to repost here. Just pray for us, For Logen really. Our new blog link: http://splendidmayhem.blogspot.com* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-80200841715569081522008-11-28T00:05:00.002-06:002008-11-28T00:15:43.693-06:00Nicky-updateI updated our blog lol and it is LONG! Lets just say it's been a long few months! Nicky has been sick most of the time he's been in school, but is doing so wonderful there, has had many asthma attacks, migraines, and three bouts of pneumonia and is on a whole list of meds now. He is now on maintenances doses of Naproxen for his migraines (after 3wks steady to break the cycle), FlowVent & Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-20337642696608374072008-11-18T12:45:00.002-06:002008-11-18T12:49:16.027-06:00NBBCI just wanted to let you all know that I started a roll call post on the NBBC, so if anyone is interested in joining us over there also, feel free. Let us know you are there!ThanksKarahttp://www.blogger.com/profile/17241576676900553092noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-66252804151894032662008-11-12T13:14:00.002-06:002008-11-12T13:20:36.344-06:00I HATE Babycenter.............I feel like they have completely tore us all apart. I miss all of you so much!! I know we have this blog & many of you have your own blogs (which I check religiously!!)...but it's not the same :(I think about all of you soooo much & wonder how your kiddos are doing....has Niki had her baby?? What about Carolyn?? UGH!!Sometimes just logging in to BBC made my day a WHOLE lot brighter....Melissahttp://www.blogger.com/profile/08803517257883129399noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-76094778335341690382008-10-29T21:51:00.003-05:002008-10-29T21:53:01.341-05:00Research on Service Delivery of Care to Children who have Had Strokes - Please help!This post is intended for parents of children who have had strokes.As a parent of a child who has had a stroke myself, I have become interested in researching the service delivery of care to children who have had strokes. I have been provided the opportunity to complete an independent study of parents and medical professionals to determine the current state of service delivery of Kierahttp://www.blogger.com/profile/09187614427642053939noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-55763182538803368942008-10-28T11:06:00.000-05:002008-10-28T11:07:24.864-05:00Update-BenHi Ladies,I wanted to post a quick update on Ben (22 months). He seemed to have hit a road block with wanting to stand (he gets soooo nervous, and just wants to sit back down). The PT has decided that it is best to go forward with the AFO's. She thinks that will help his balance, the way his feet/ankles/legs are positioned, as well as his confidence. We are going to a Rehab Dr at Children's cmontaghttp://www.blogger.com/profile/07011671721962721599noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-12361105732956826972008-10-18T21:35:00.004-05:002008-10-18T21:57:29.238-05:00My baby turned 5 this week!!My Emma turned five this week. Where did the time go? It seems just like yesterday that we brought her home, scared and afraid for her future. I nearly worried myself to death those first couple of years, and I wish I could get that time back--knowing what I know now! Oh well, you know they say you can't go back. Emma has been doing very, very well lately. She got flowers from her PT clinic aboutAmyhttp://www.blogger.com/profile/11818818093248788832noreply@blogger.com7tag:blogger.com,1999:blog-5265513914132127243.post-68182679180496086802008-10-16T21:30:00.001-05:002008-10-16T21:30:41.028-05:00911 CallToday has been interesting. Interesting. At 8:04am my phone rang- I missed the call b/c I was dropping Parker off at daycare. At 8:05am I was in the car heading towards my school and listening through 14 voice mails to get to the one Logen's school had just left me (if that tells you anything, I don't listen to voice mails very often)The lady had said Logen is in the nurses office and they've * ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-17512465569887188182008-10-13T21:17:00.002-05:002008-10-13T21:19:13.244-05:00Okay, just a quick little thingy here....It seems like people aren't really posting much here or on the NBBC. How would everyone feel about a board on proboards? I know I asked before, but the admins at mymommytime.com created a CP board at my request over there, and the format is really simple. Anyone want to join me over there?Melindahttp://www.blogger.com/profile/18414984346037884326noreply@blogger.com6tag:blogger.com,1999:blog-5265513914132127243.post-83980990352163253112008-10-11T20:55:00.004-05:002008-10-11T21:14:25.407-05:00Update on me & mineHi ladies! I feel like I haven't been able to talk with you all in forever. So many things have been going on, and at times feel like it's all going to fall....but only the strong survive, right? Well, here come the update...I'm currently 8 months pregnant with my 3rd baby, and will be going by c/s by December 1st. I would really like to wait til the 8th, (of which I'm due) but my hubby is scaredchicana_mami_2_3boishttp://www.blogger.com/profile/05243588986522672760noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-67735624375025929832008-10-11T11:39:00.003-05:002008-10-11T11:40:27.809-05:00Does anyone ever hear from Alisha?Just wondering how her and her Wiggles & Gumballs are doing? They never made it over here did they?Dawnhttp://www.blogger.com/profile/14600361913851978373noreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-67209799437458323142008-10-05T23:32:00.003-05:002008-10-05T23:38:31.827-05:00Nosies!Haven't had a round of these since we were on Old BBC- Maybe a dose of the nosey thread will get us moving! I'll post a few and answer in the comment section~ I'm going back to basic questions, I know we've probably answered these before. 1) Whats your favorite color?2) Your favorite food?3) Favorite scent for your home?4) Do you text message? On average, how many per day?* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-48209067278209718832008-10-03T03:28:00.002-05:002008-10-03T03:41:35.173-05:00Update on usOkay, just a quick update on here. I'll update more in-depth on my blog. Bri started preschool on Sept. 9. I was a nervous wreck about it, especially when I learned that she was the only girl, she's the only one who can't walk, has special meds, feeding tube, etc. It wasn't reassuring to find out that the teacher had reservations about her being in the class, because she had no experience withMelindahttp://www.blogger.com/profile/18414984346037884326noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-42367507953006950292008-10-01T09:15:00.002-05:002008-10-01T09:19:30.268-05:00UpdatesOk, girls. It's definitely time for some updates! Some of you are about to pop out babies, ALL of your babies are getting older, some of you are going to school, some are changing jobs, some have moved out of state or country...I'd love to hear about it all!I really miss the old BBC board, where we "talked" often. I noticed that the old BBC is still up-and-running, so if y'all were ever Unknownnoreply@blogger.com8tag:blogger.com,1999:blog-5265513914132127243.post-86482927861577739552008-09-24T11:38:00.002-05:002008-09-24T11:42:26.566-05:00I've Got It On Video!Oh, girls. I've been so very horrible with posting and responding to your posts. I HAVE been reading, and cheering with you, and crying with you... I'm actually really missing our BBC board. The format just seemed so much easier. And it's REALLY HARD for me to get onto blogs at work, which is where I spied on y'all most often.At any rate, I just wanted to share this video that my DH took at Unknownnoreply@blogger.com8tag:blogger.com,1999:blog-5265513914132127243.post-91017062038717394302008-09-14T16:03:00.002-05:002008-09-14T16:12:53.916-05:00Jason starts 4th grade tomorrow!!!!!Jason is starting his first day of 4th grade tomorrow. He goes to a year round school, so the schedule is different. I think he is a little hesitant this time around, because he is starting to realize that he is getting older and has so many more responsibilities now. The class he has been put in, has a teacher who is good with children with disabilities, so that is a big plus. Jason needs toAlaishttp://www.blogger.com/profile/15951494214573612433noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-51140304249025305762008-09-09T10:15:00.002-05:002008-09-09T10:31:44.904-05:00Hi Everyone!! It has been quite a while since I have last updated, but I do follow the board religously and love to see what your "little one's" are accomplishing. As for "Benny", he has been doing well as of late(knock on wood). 2 months ago, he did have another major seizure which was triggered by a fever. He had to be intibated, and was at our local Children's Hospital for two days. He did cmontaghttp://www.blogger.com/profile/07011671721962721599noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-45293601041911002412008-09-08T20:33:00.003-05:002008-09-08T20:48:41.423-05:00We need prayers,too, pleaseI wanted to say good luck to Logen on his first day of kindergarten. Jess, I remember that old pic that used to be your avatar on the OBBC a long time ago with Logen as a little guy in the tube in the pool. WOW! I can't believe he's 5 already!!We also could use some prayers for Sammy. He is starting in the integrated preschool tomorrow for a half day. Brian will be bringing him since I have ellen :)http://www.blogger.com/profile/00430928372919539591noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-56971142349415912542008-09-07T22:21:00.000-05:002008-09-07T22:22:03.541-05:00Going to "real' schoolLogen goes to Kindergarten tomorrow. I have dreaded this day for a very long time. Probably since 'around the time of diagnosis'. I have always viewed 'real school' negatively for Logen. (Since I have such a positive outlook on things... ha) I hated knowing that he'd be in the "Special Ed" class, even though thats not what they call it at his school. That'd he would be classified as 'different' * ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com2