Nicholas

I updated my blog the other day with the story about Nicholas's eye appointment. I'm too lazy right now to copy & paste it but the gist of it is Nicholas is going to need surgery to fix his eyes =( Glasses just wont cut it any more and the patch is not an option because of his bouts of severe head pain. They are hoping to have him booked within the next year to have the surgeries started he'll need two, one per eye, and then patching or glasses to fix the vision issue in his one eye.

On the upside Nicholas has been discharge from NICU follow up and is now NICU alumni, so we now get to go to all the alumni picnics and get togethers!

-Liz

We made it!

A brief post... we made it to St Louis. Logen's appt at the hosp is in the morning at 8am. I will update when we get back to our hotel. I'll post pictures on my family blog, but won't duel post those here to. Lazy me. :) Pray for answers!!!!

*Update on Andres' botox surgery

Hi ladies! I'm sorry that I haven't had a chance to give an update, so here it is:

Andres wasn't given anything this time to relax before they put him to sleep, but he didn't even cry when I handed him over. I actually had a harder time than he did! I was called back when it was about time for him to wake up, and he woke up alot better than he did last time. He was casted while he was asleep, so I was warned that he would be really sore. I gave him Motrin all weekend long to subdue any soreness that he might feel. But the best part of this whole thing is that he took to his walker the same afternoon of the surgery! His dad took some time off work to help out after the surgery; he really is a great dad.

Anyways in conclusion, for any of you that are thinking about this for your child; I think it is great. But I think it would vary on what your child is/may be allergic to. I know there is one mom in particular that tried on this board and it didn't go well. (Please forgive me; I can't place your name @ the moment) If you have any questions in regards to my experience with my son's botox injections or serial casting, please don't hesitate to ask. I'm happy that I have all of you ladies to share my joys with and to help me with my strength when I'm feeling weak.

Sorry for making this so long! I hope that all is well with all of you!

<-----(my sons)

Andres (with his walker) & Diego

-Angelica

He's Weird, Whaaaaattttt?

{I'm Duel Posting Here & On My Blog}

I wanted to blog this the day it happened, but I couldn't. I can't let it sink in b/c then it might be real. The truth is, I know it's real, but that doesn't make it suck any less. Here's what happened.

Logen & I walk into preschool, happily. He wonders off to play in the kitchen center. I sign him in and walk over to kiss him good bye.
Little girl, age 4 or 5: He's weird
Me: What did you say?
Girl: I said, he's weird
Me: Why do you say that? (My heart is beginning to sink)
Girl: Because, he walks funny and he dribbles {meaning: he drools, CONSTANTLY}
Me: Well, everybody is different
Girl: Yeah, but why is he so weird?
Me: {Oh, God, please carry me out of here without crying. I can't do this! I can't. She's just 5, she doesn't know it hurts me. She doesn't understand}
Me: Well, Thats the way God made him and it's ok that he's like that, he's special. Just like you are special. Everybody here is special.
Girl: Oh, he gets everything wet
Me: Turn and walk away with tears in my eyes. Stare at teacher, not sure if she heard me. This child is not in his class, so she's not been told the "I'm special" story. It's ok. We can do this. Really, we can. It's going to be fine.

And, I think. He's 4 and a half. He goes to kindergarten in 2009. What do I do. If kids are already starting to notice the difference and point them out now, how do I handle them then? Will they shun him? OH, I just don't think we can do this. And, Logen- Logen can't explain to me how this makes him feel. It hurts me more every time I think about. A 5 year old hurt me this bad. How do I deal?????????

~*~*~*~ Jessica ~*~*~*~