tag:blogger.com,1999:blog-52655139141321272432012-02-05T20:13:06.396-06:00* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.comBlogger771100tag:blogger.com,1999:blog-5265513914132127243.post-83547628682821563222010-03-07T23:06:00.001-06:002010-03-07T23:09:32.263-06:00

=) I finally updated my blog and I am in desperate need of your help! Nicky is suppose to be getting his wheelchair and walker ordered this week, these will be the ones he uses when he starts JK in Sept. Can you please view my choices and tell me what your opinion is or if you know of better equipment can you tell me what it is you use? Thank you!I hope you are all doing wonderfully, haven't

SDnoreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-86778543834457260372009-09-23T11:53:00.002-05:002009-09-23T11:56:23.016-05:00

Hey Guys- I say Liz's post on my blogroll so I thought I would post this here to.Logen was diagnosed with a Mitochondrial Disease this week. Rough week going through the diagnosis thing again. :(Hope all of you are doing well. I keep meaning to check all of your blogs to see the kiddos and hear what they are doing. We've just had some not-to-great stuff going on and I haven't had a chance. Soon,

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-23238145659476037332009-07-24T01:22:00.001-05:002009-07-24T01:23:31.391-05:00

I take it no one checks this any more? lol it's kind of dead where is everyone and how is everyone doing?

SDnoreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-90694701149034721412009-03-12T01:46:00.001-05:002009-03-12T01:47:18.702-05:00

where all you all? how have you all been doing? lol been a silent bunch lately, I hope that is a really good thing!!-Liz

SDnoreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-76787780893880009982009-01-31T04:19:00.004-06:002009-01-31T04:44:31.483-06:00

while things are going....that is about all I can say, sorry it's been so long but we've been mighty busy with endless illnesses in this house. Everyone seems to just keep passing bug after bug around UGH! While anyway Nicky's doctor from the asthma clinic is on mat leave and a respiratory specialist from sick kids has taken over for her, and it's a mixed blessing. After being told SINCE BIRTH

SDnoreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-30522376728834266482009-01-05T14:51:00.002-06:002009-01-05T14:52:11.405-06:00

Hi all, just wondering if anyone ever hears from NJ Karen and how things are going with her. Darts to BBC for making everyone disappear!

Dawnhttp://www.blogger.com/profile/14600361913851978373noreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-66627521067677878602008-12-05T13:41:00.002-06:002008-12-05T13:43:07.465-06:00

Logen is in DESPERATE need of prayers. I am in no shape to repost here. Just pray for us, For Logen really. Our new blog link: http://splendidmayhem.blogspot.com

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-80200841715569081522008-11-28T00:05:00.002-06:002008-11-28T00:15:43.693-06:00

I updated our blog lol and it is LONG! Lets just say it's been a long few months! Nicky has been sick most of the time he's been in school, but is doing so wonderful there, has had many asthma attacks, migraines, and three bouts of pneumonia and is on a whole list of meds now. He is now on maintenances doses of Naproxen for his migraines (after 3wks steady to break the cycle), FlowVent & Ventolin

SDnoreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-20337642696608374072008-11-18T12:45:00.002-06:002008-11-18T12:49:16.027-06:00

I just wanted to let you all know that I started a roll call post on the NBBC, so if anyone is interested in joining us over there also, feel free. Let us know you are there!Thanks

Karahttp://www.blogger.com/profile/17241576676900553092noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-66252804151894032662008-11-12T13:14:00.002-06:002008-11-12T13:20:36.344-06:00

I feel like they have completely tore us all apart. I miss all of you so much!! I know we have this blog & many of you have your own blogs (which I check religiously!!)...but it's not the same :(I think about all of you soooo much & wonder how your kiddos are doing....has Niki had her baby?? What about Carolyn?? UGH!!Sometimes just logging in to BBC made my day a WHOLE lot brighter....especially

Melissahttp://www.blogger.com/profile/08803517257883129399noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-76094778335341690382008-10-29T21:51:00.003-05:002008-10-29T21:53:01.341-05:00

This post is intended for parents of children who have had strokes.As a parent of a child who has had a stroke myself, I have become interested in researching the service delivery of care to children who have had strokes. I have been provided the opportunity to complete an independent study of parents and medical professionals to determine the current state of service delivery of

Kierahttp://www.blogger.com/profile/09187614427642053939noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-55763182538803368942008-10-28T11:06:00.000-05:002008-10-28T11:07:24.864-05:00

Hi Ladies,I wanted to post a quick update on Ben (22 months). He seemed to have hit a road block with wanting to stand (he gets soooo nervous, and just wants to sit back down). The PT has decided that it is best to go forward with the AFO's. She thinks that will help his balance, the way his feet/ankles/legs are positioned, as well as his confidence. We are going to a Rehab Dr at Children's

cmontaghttp://www.blogger.com/profile/07011671721962721599noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-12361105732956826972008-10-18T21:35:00.004-05:002008-10-18T21:57:29.238-05:00

My Emma turned five this week. Where did the time go? It seems just like yesterday that we brought her home, scared and afraid for her future. I nearly worried myself to death those first couple of years, and I wish I could get that time back--knowing what I know now! Oh well, you know they say you can't go back. Emma has been doing very, very well lately. She got flowers from her PT clinic about

Amyhttp://www.blogger.com/profile/11818818093248788832noreply@blogger.com7tag:blogger.com,1999:blog-5265513914132127243.post-68182679180496086802008-10-16T21:30:00.001-05:002008-10-16T21:30:41.028-05:00

Today has been interesting. Interesting. At 8:04am my phone rang- I missed the call b/c I was dropping Parker off at daycare. At 8:05am I was in the car heading towards my school and listening through 14 voice mails to get to the one Logen's school had just left me (if that tells you anything, I don't listen to voice mails very often)The lady had said Logen is in the nurses office and they've

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-17512465569887188182008-10-13T21:17:00.002-05:002008-10-13T21:19:13.244-05:00

Okay, just a quick little thingy here....It seems like people aren't really posting much here or on the NBBC. How would everyone feel about a board on proboards? I know I asked before, but the admins at mymommytime.com created a CP board at my request over there, and the format is really simple. Anyone want to join me over there?

Melindahttp://www.blogger.com/profile/18414984346037884326noreply@blogger.com6tag:blogger.com,1999:blog-5265513914132127243.post-83980990352163253112008-10-11T20:55:00.004-05:002008-10-11T21:14:25.407-05:00

Hi ladies! I feel like I haven't been able to talk with you all in forever. So many things have been going on, and at times feel like it's all going to fall....but only the strong survive, right? Well, here come the update...I'm currently 8 months pregnant with my 3rd baby, and will be going by c/s by December 1st. I would really like to wait til the 8th, (of which I'm due) but my hubby is scared

chicana_mami_2_3boishttp://www.blogger.com/profile/05243588986522672760noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-67735624375025929832008-10-11T11:39:00.003-05:002008-10-11T11:40:27.809-05:00

Just wondering how her and her Wiggles & Gumballs are doing? They never made it over here did they?

Dawnhttp://www.blogger.com/profile/14600361913851978373noreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-67209799437458323142008-10-05T23:32:00.003-05:002008-10-05T23:38:31.827-05:00

Haven't had a round of these since we were on Old BBC- Maybe a dose of the nosey thread will get us moving! I'll post a few and answer in the comment section~ I'm going back to basic questions, I know we've probably answered these before. 1) Whats your favorite color?2) Your favorite food?3) Favorite scent for your home?4) Do you text message? On average, how many per day?

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-48209067278209718832008-10-03T03:28:00.002-05:002008-10-03T03:41:35.173-05:00

Okay, just a quick update on here. I'll update more in-depth on my blog. Bri started preschool on Sept. 9. I was a nervous wreck about it, especially when I learned that she was the only girl, she's the only one who can't walk, has special meds, feeding tube, etc. It wasn't reassuring to find out that the teacher had reservations about her being in the class, because she had no experience with

Melindahttp://www.blogger.com/profile/18414984346037884326noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-42367507953006950292008-10-01T09:15:00.002-05:002008-10-01T09:19:30.268-05:00

Ok, girls. It's definitely time for some updates! Some of you are about to pop out babies, ALL of your babies are getting older, some of you are going to school, some are changing jobs, some have moved out of state or country...I'd love to hear about it all!I really miss the old BBC board, where we "talked" often. I noticed that the old BBC is still up-and-running, so if y'all were ever

Chrystienoreply@blogger.com8tag:blogger.com,1999:blog-5265513914132127243.post-86482927861577739552008-09-24T11:38:00.002-05:002008-09-24T11:42:26.566-05:00

Oh, girls. I've been so very horrible with posting and responding to your posts. I HAVE been reading, and cheering with you, and crying with you... I'm actually really missing our BBC board. The format just seemed so much easier. And it's REALLY HARD for me to get onto blogs at work, which is where I spied on y'all most often.At any rate, I just wanted to share this video that my DH took at

Chrystienoreply@blogger.com8tag:blogger.com,1999:blog-5265513914132127243.post-91017062038717394302008-09-14T16:03:00.002-05:002008-09-14T16:12:53.916-05:00

Jason is starting his first day of 4th grade tomorrow. He goes to a year round school, so the schedule is different. I think he is a little hesitant this time around, because he is starting to realize that he is getting older and has so many more responsibilities now. The class he has been put in, has a teacher who is good with children with disabilities, so that is a big plus. Jason needs to

Alaishttp://www.blogger.com/profile/15951494214573612433noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-51140304249025305762008-09-09T10:15:00.002-05:002008-09-09T10:31:44.904-05:00

Hi Everyone!! It has been quite a while since I have last updated, but I do follow the board religously and love to see what your "little one's" are accomplishing. As for "Benny", he has been doing well as of late(knock on wood). 2 months ago, he did have another major seizure which was triggered by a fever. He had to be intibated, and was at our local Children's Hospital for two days. He did

cmontaghttp://www.blogger.com/profile/07011671721962721599noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-45293601041911002412008-09-08T20:33:00.003-05:002008-09-08T20:48:41.423-05:00

I wanted to say good luck to Logen on his first day of kindergarten. Jess, I remember that old pic that used to be your avatar on the OBBC a long time ago with Logen as a little guy in the tube in the pool. WOW! I can't believe he's 5 already!!We also could use some prayers for Sammy. He is starting in the integrated preschool tomorrow for a half day. Brian will be bringing him since I have

ellen :)http://www.blogger.com/profile/00430928372919539591noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-56971142349415912542008-09-07T22:21:00.000-05:002008-09-07T22:22:03.541-05:00

Logen goes to Kindergarten tomorrow. I have dreaded this day for a very long time. Probably since 'around the time of diagnosis'. I have always viewed 'real school' negatively for Logen. (Since I have such a positive outlook on things... ha) I hated knowing that he'd be in the "Special Ed" class, even though thats not what they call it at his school. That'd he would be classified as 'different'

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-26511794360878918272008-09-02T16:20:00.001-05:002008-09-02T16:22:57.670-05:00

(Dual Post on my blog and this one- I need that much help!)I've been crying a better part of today. I'm at the part of the road where a turn is obvious. Normally, I'm fairly good at staying in control and making the right turn w/o regrets. This turn, however- I can't seem to make.From last night's post here, you know I'm considering other options 'therapy wise'.Today's events: Logen has been

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com6tag:blogger.com,1999:blog-5265513914132127243.post-36261340150168020582008-09-02T16:18:00.002-05:002008-09-02T16:27:05.886-05:00

We are so proud of him! He has beat substantial odds and is turning into a son we are very proud of. I am going to copy and paste below what I wrote in my blog on myspace below. I have to say that Jason has taught us soooo much and to be very thankful for all the good around us. Sometimes life can be so unfair, but how you choose live with what you are dealt is what makes our days happy ones.

Alaishttp://www.blogger.com/profile/15951494214573612433noreply@blogger.com6tag:blogger.com,1999:blog-5265513914132127243.post-43295129287882769502008-08-30T00:08:00.004-05:002008-08-30T00:41:06.211-05:00

I just wanted to die after his appointment, believe me we now know how lucky we are to have him. Nicholas actually has a very severe form of PVL (Periventricular leukomalacia) his is actually so severe we were told that 75% of neonates that are dxed with it as severe as his are dxed during autopsy!!! Of the 25% who go home they usually have severe spastic quad CP, 23% are severely mental

SDnoreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-58205001530225445002008-08-28T17:20:00.002-05:002008-08-28T17:22:57.468-05:00

1, 387! Did you see that? Our blog has had lots of traffic in less than 2 months. It's a big deal to see you gals posting here for me. It's taken a lot of time to get going (and I still have several pictures to create & add that you've emailed to me), and I would be terribly sad if nobody came to visit it. Thanks!!! Have a wonderful day :)

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-19974341333476134432008-08-21T12:44:00.001-05:002008-08-21T12:45:59.354-05:00

Just wanted to say HAPPY 5TH BIRTHDAY to Logen!!! I know he's on a fabulous vacay at the beach...probably sipping on some apple juice on the sand :)Have a great day, little one!!

Melissahttp://www.blogger.com/profile/08803517257883129399noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-84887296195589208312008-08-21T02:34:00.003-05:002008-08-21T02:42:57.271-05:00

Hey all, sorry I've not updated in so long! Things have been incredibly hectic around here. We got Bri's first manual wheelchair finally, in July. It's a cute little Zippie Tilt & Space, a purple frame, with lavender and black upholstery, and her name embroidered in the back. Brianna LOVES sitting in it...she spends most of the day in it when she's at daycare.Speaking of daycare...don't know

Melindahttp://www.blogger.com/profile/18414984346037884326noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-56292111620440058852008-08-20T01:47:00.002-05:002008-08-20T02:07:57.529-05:00

We've had a really rough month here. Nicholas needs to be circumcised, not sure if I posted about it already, and is being booked asap now to get his eyes fixed because they have gotten really really bad over the last two weeks. He is going back to the eye clinic again in two weeks for an alignment check and because she wants to keep a closer eye on him until surgery but he does need glasses asap

SDnoreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-51978207093142785752008-08-19T17:24:00.002-05:002008-08-19T17:32:06.495-05:00

Sorry that I haven't been around lately. We have taken several small trips lately, visited a few doctors for checkups (YUCK), visited family, and done some more therapy for Emma. I wish I could note dramatic improvements, but none to report.I really hate that I have missed some birthdays and important events among you all, but having a CP kiddo keeps me running. I am sorry, but I have truly

Amyhttp://www.blogger.com/profile/11818818093248788832noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-69817426394932839362008-08-18T12:09:00.002-05:002008-08-18T12:21:34.432-05:00

LOL, I can actually access the blog today from work and so I am trying to get caught up with what everyone's been up to. Forgive many of my late late (and likely impertinent) comments. Anyway, work's been kicking my butt to the tune of 60 hours a week. Nights, weekends and days. But we're nearing the end of the project so woo hoo!As for us, Hunter gets his AFO's tomorrow and I'm so totally

KPKozehttp://www.blogger.com/profile/06802494903202039943noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-74326041366036803352008-08-14T22:48:00.004-05:002008-08-14T22:57:22.232-05:00

Suzanne was in town this evening and we had a chance to meet up and talk in person. I thought I would share a couple of pics, so you can see Sammy and Reichen together. It is so nice to spend a little time with another family who is have similar experiences.By the way, I have to say that Suzanne has some of the cutest, best behaved kids I have ever met! It was a great time :)If you are

Kierahttp://www.blogger.com/profile/09187614427642053939noreply@blogger.com6tag:blogger.com,1999:blog-5265513914132127243.post-12306600271975828862008-08-13T22:10:00.002-05:002008-08-13T22:11:23.302-05:00

HAPPY 2nd BIRTHDAY MIA :) Hope today was great!

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-41344134563149380462008-08-12T22:49:00.002-05:002008-08-12T22:56:16.161-05:00

Cerebral Palsy MagazineI found found some great articles from this magazine. Wasn't sure if anybody else got the magazine, so I wanted to post the info needed to get the mag. There are older issues you can download for free. That may help you make your decicion :) Let me know what you decide. I'm also game for paying one year, reading the mag and passing it on. The when renewal comes up the next

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-79561249784007038632008-08-12T17:45:00.002-05:002008-08-12T17:48:09.399-05:00

Austin has his MRI tomorrow. I'm anxious to hear if his brain has had any changes since his CT scan when he was only a few weeks old. But then I'm nervous about the day, sedation is never fun and I know he'll be starving by the time it's over. Plus he has such high doctor anxiety these days, I know tomorrow will be crazy. Wish us luck.

Dawnhttp://www.blogger.com/profile/14600361913851978373noreply@blogger.com7tag:blogger.com,1999:blog-5265513914132127243.post-50843508901724330672008-08-10T10:52:00.003-05:002008-08-10T23:05:48.429-05:00

Hi GalsI hope that you are all doing well. Sorry about not being around much. The summer has been beautiful and I have not been spending any more time on my computer than needed for work. I am sure I will get back into it once school kicks up in September. I do think of you all often and enjoy reading what your kiddos are up to!I am looking for some advice from you Mommy's with older little

Kierahttp://www.blogger.com/profile/09187614427642053939noreply@blogger.com6tag:blogger.com,1999:blog-5265513914132127243.post-4686170796086571622008-08-08T10:52:00.002-05:002008-08-08T10:54:37.436-05:00

Hey Girls! I added a song to our blog~ Let me know what you think. I think there may have been issues with blog viewing for some of you one a playlist was added. We can 'do away' with it if it's a view problem. Do you have any more you'd like to hear on the playlist? I could only think of 1 good 'appropriate' for our blog song.

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-19961917677147880332008-08-07T15:32:00.002-05:002008-08-07T15:34:25.684-05:00

Just wanted to fix Dawn's blog link to the right... it's spelled incorrectly and therefore doesn't link you to the blog... it's actually saintprairiedawn.blogspot.comFYIEllen :)

ellen :)http://www.blogger.com/profile/00430928372919539591noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-68606169023175997422008-08-01T15:24:00.002-05:002008-08-01T15:27:27.053-05:00

Heh Ladies!!!! How are you all doing? Sorry I have not been on here yet. But between home stuff and occasionally getting onto BBC to check and post every so often, I don't seem to have time to go anywhere else. I wanted to come on and say hi though. I do have my own blog if you want to link in, but I am not sure if I have the privacy settings right on it. Can anyone help me with some

Alaishttp://www.blogger.com/profile/15951494214573612433noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-49938163953130949882008-08-01T08:38:00.002-05:002008-08-01T08:40:23.608-05:00

You should notice the 'new' blog list on your right. If you do not want your blog listed, let me know so that I can remove you. If you would like to be added, also let me know.

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-46346196225881430952008-07-31T10:08:00.002-05:002008-07-31T10:12:09.906-05:00

Hope you are having a great 5th birthday! Share some cake with Mia :)

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-51769486299688288432008-07-30T14:44:00.002-05:002008-07-30T14:50:20.514-05:00

Why us?? Why did God choose me & my family to go through this? Why did He choose you all?? In light of Joshie's 5th birthday tomorrow, I am happily bittersweet. I am so proud of my boy & how far he has come, how much he has accomplished....but on the other hand, WHY HIM???? He should be out running through the grass on his birthday, playing in the surf....but my son is (happily) cruising around

Melissahttp://www.blogger.com/profile/08803517257883129399noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-12845860761087900922008-07-30T13:25:00.004-05:002008-12-10T13:35:11.416-06:00

I knew that YOU GIRLS would "get this" more than anyone else. The other day, we were at an indoor market place, and Ellie wanted to stand at the railing. I was actually able to leave her there for 30 seconds, and she stood on her own, holding tightly onto the rails! For those 30 seconds, she looked completely "typical". Like any other three-year-old little girl. I actually thought to myself,

Chrystienoreply@blogger.com10tag:blogger.com,1999:blog-5265513914132127243.post-69079660204851677252008-07-30T09:41:00.001-05:002008-07-30T09:43:21.336-05:00

I posted an update on my blog about our St Louis trip. The gist- he was put on 4 meds and his seizures have the potential to be fatal. Crappy news! http://duncanfamily2004.blogspot.com/2008/07/seizure-update-st-louis-appt.html

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-74070323228242174562008-07-30T09:37:00.001-05:002008-07-30T09:39:34.414-05:00

I'm excited :) Hannah's Mommy (Trina) is flying in to hang out with us for the weekend! Watch out Arkansas, here comes trouble :P

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-15113392025046543692008-07-29T14:13:00.001-05:002008-07-29T14:17:28.219-05:00

This morning at approximately 11:42 am So Cal had an earthquake!! I've lived here all my life so this is nothing new, however, this is the 1st "big one" since I had my kiddos & I was terrified!!! 1st instinct was to grab them both & run to the doorway until the shaking stopped. Of course, it didn't faze either of them & they were actually mad that I took them away from "Barney"!!!The early

Melissahttp://www.blogger.com/profile/08803517257883129399noreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-60851780637169260082008-07-26T00:27:00.002-05:002008-07-26T00:32:41.119-05:00

I updated my blog the other day with the story about Nicholas's eye appointment. I'm too lazy right now to copy & paste it but the gist of it is Nicholas is going to need surgery to fix his eyes =( Glasses just wont cut it any more and the patch is not an option because of his bouts of severe head pain. They are hoping to have him booked within the next year to have the surgeries started he'll

SDnoreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-57676745688661514552008-07-23T23:59:00.003-05:002008-07-24T00:01:06.854-05:00

A brief post... we made it to St Louis. Logen's appt at the hosp is in the morning at 8am. I will update when we get back to our hotel. I'll post pictures on my family blog, but won't duel post those here to. Lazy me. :) Pray for answers!!!!

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-92122520050064556532008-07-22T23:30:00.002-05:002008-12-10T13:35:11.582-06:00

Hi ladies! I'm sorry that I haven't had a chance to give an update, so here it is:Andres wasn't given anything this time to relax before they put him to sleep, but he didn't even cry when I handed him over. I actually had a harder time than he did! I was called back when it was about time for him to wake up, and he woke up alot better than he did last time. He was casted while he was asleep, so I

chicana_mami_2_3boishttp://www.blogger.com/profile/05243588986522672760noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-11215674508876845782008-07-21T18:02:00.001-05:002008-07-21T18:03:37.151-05:00

{I'm Duel Posting Here & On My Blog} I wanted to blog this the day it happened, but I couldn't. I can't let it sink in b/c then it might be real. The truth is, I know it's real, but that doesn't make it suck any less. Here's what happened.Logen & I walk into preschool, happily. He wonders off to play in the kitchen center. I sign him in and walk over to kiss him good bye. Little girl, age 4 or 5:

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-41849217300809387462008-07-19T23:46:00.003-05:002008-12-10T13:35:12.679-06:00

I was inspired by Melissa's pics of Joshie on the horsie to post a pic of Sammy's own brand of hippotherapy with my sister Mary and her horse, Amber. We went to the barn the other day..it was SO hot amd humid, but Amber was a trooper! She's a sweet horse... Luke took a ride, too...he's been riding her since he was 2!! :) They love it!! (Sammy cries when we take him off!)

ellen :)http://www.blogger.com/profile/00430928372919539591noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-5411135669834275552008-07-19T23:41:00.001-05:002008-07-19T23:43:44.457-05:00

Happy, Happy Birthday, Melinda!! :) Hope you had a fabulous day.....(sorry this is technically after midnight...) ;)Hugs,Ellen, Luke, and Sammy :)

ellen :)http://www.blogger.com/profile/00430928372919539591noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-24480871473431096402008-07-19T20:48:00.003-05:002008-12-10T13:35:12.937-06:00

O.K. girls, bear with me. This will officially be my 1st blog post ever!! YAY!!! Like Chrystie, I don't *really* have lots of news with Joshie. He's in summer school until Wed. of next week then he's off until Sept. We're quickly approaching his 5th birthday (the 31st) & I STILL am having a hard time wrapping that around my brain.....where did the time go??He's LOVING Hippotherapy & I really can

Melissahttp://www.blogger.com/profile/08803517257883129399noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-91160271475517842512008-07-19T09:02:00.002-05:002008-07-19T09:20:54.166-05:00

Oh girls. Accept my apology for my serious lack of communication lately. Things have been busy, and for some reason, my posting motivation has been really low. I have a hundred things to say, both to you and on my personal blog, but regurgitation from head to screen is sometimes overwhelming and unattractive. So, basically, I have no good excuse for my absence. But, I've been reading and loving,

Chrystienoreply@blogger.com6tag:blogger.com,1999:blog-5265513914132127243.post-19522937790418410942008-07-17T12:28:00.002-05:002008-07-17T12:34:11.399-05:00

I posted this on NBBC also, but since most of us are not there anymore, I thought I would finally give the blog a try (I hope I do it right)! Addison had a sedated ABR (hearing test) on Mon. it was a such a mess, she would not go to sleep after they gave her the medicine to sedate her, they had to give her a second dose and she still fought me so hard to go to sleep. She ended up crying

Karahttp://www.blogger.com/profile/17241576676900553092noreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-73839544653857927552008-07-16T22:21:00.003-05:002008-07-16T22:33:59.096-05:00

Tell them to print out this flier and get their butts down to the Ontario Federation for Cerebral Palsy office! They are giving out FIVE free toys to every child with Cerebral Palsy who goes in there this Friday and Saturday WOOHOO can you guess where we are going this weekend? lol Brett Carleton and his family donated a crap load of toys to them to give out, I thought it was wonderful! Nicholas

SDnoreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-61462174806646440692008-07-15T22:00:00.002-05:002008-07-15T22:15:54.461-05:00

Well turns out Nicholas's head ache are just going to be a normal part of his CP, after 14hrs in the emerg and one CT scan with dye later we were discharged with a "there is nothing that can be done, the attacks are too short so if you give him anything for it by the time it kicks in they will be gone already, the only thing you can really do is comfort him through them" HOW DEPRESSING? poor guy

SDnoreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-90254224013960473812008-07-14T18:41:00.006-05:002008-12-10T13:35:13.335-06:00

Emma is doing very well with her tricycle this summer. If she is good, she can ride until her heart is content. I wanted to practice adding a photo, so here is one.

Amyhttp://www.blogger.com/profile/11818818093248788832noreply@blogger.com7tag:blogger.com,1999:blog-5265513914132127243.post-70897587774945202372008-07-13T16:58:00.002-05:002008-07-13T17:08:39.298-05:00

So if its not one thing it's another. Hannah likes to drop her sodium when she is sick with no real reason. So her Dr is out of town right now and she has to get sick..... after seeing a dumb Dr and daily lab draws she was put in the PICU on friday for low sodium. Her sodium dropped to a bad 122 normal is135 and higher . I was told if it gets in the teens she would start having seizures . The

Trinahttp://www.blogger.com/profile/01316906690574493531noreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-51194336365182827092008-07-12T14:04:00.002-05:002008-07-12T14:18:50.222-05:00

Andres has another botox appointment next Friday because his legs have become tight again. The good thing is that this time his first serial cast will be placed the same day that he has the botox done. I'm excited because I love what the botox did last time; (with the exception of that idiot doctor taking off his casts WAY too early) but at the same time I'm dreading it because he did horrible

chicana_mami_2_3boishttp://www.blogger.com/profile/05243588986522672760noreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-20014469819665496352008-07-11T21:21:00.001-05:002008-07-11T21:22:27.335-05:00

You know I could explain the whole week and everything, but it doesn't matter. I just need to know there are good days too. I tried to read "success" stories and it didn't help. I tried to remember he's with me for a reason. It doesn't matter. It's simply not what I signed up for and I'm pissed. I want that doctor to pay. Not because I want money but I want him to pay for what he's done to

KPKozehttp://www.blogger.com/profile/06802494903202039943noreply@blogger.com7tag:blogger.com,1999:blog-5265513914132127243.post-48837853698633364002008-07-10T10:14:00.003-05:002008-07-10T17:34:15.968-05:00

Mia has hardly eaten this past month. She refuses most foods, including sweets (sometimes I will try and give her something sweet just to see if she will eat it). She does drink about 32 ounces of pediasure a day. She can eat.As a baby she ate pretty well but she didn't gain a lot of weight. She would eat a couple of jars of baby food at one time without a problem. Over the past month she just

Tarahttp://www.blogger.com/profile/17885620933827887050noreply@blogger.com7tag:blogger.com,1999:blog-5265513914132127243.post-40815619191671313812008-07-10T09:03:00.002-05:002008-07-10T09:10:32.738-05:00

I am struggling with the amount of therapy that Sammy is getting. At first I wanted more, now we have too much, I just was wondering how you ladies have found a balance between everything. I think at first I was like ok this is my number one priority. Now, I am feeling like our day centers around when Sammy has therapy. If I only had him I would feel like it was great. But I have four other

Popcorn Housenoreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-45093303032350920722008-07-08T23:21:00.003-05:002008-07-09T13:42:10.006-05:00

Emma's arms are the most spastic part of her body, above her legs and all else. She has trouble with bearing weight on them, reaching, crawling on hands and knees. She tends to keep the flexed toward herself, even though we do ROM and exercise on them daily. So, this limits her in many ways. She cannot feed herself or get herself to her walker from the floor. It literally makes her completely

Amyhttp://www.blogger.com/profile/11818818093248788832noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-28877208197873364732008-07-08T23:21:00.002-05:002008-07-08T23:31:05.893-05:00

Emma at spaghetti off the kid's menu at Friday's over the weekend. This was the first time that she has ever done this. For the past 4 years I have always had to puree her food, so we don't eat out that much. I usually have to take her food into the restaurant in a Thermos. She has always had a bunch of oral motor issues!! This weekend all I did was chop it up with a fork and feed her.

Amyhttp://www.blogger.com/profile/11818818093248788832noreply@blogger.com10tag:blogger.com,1999:blog-5265513914132127243.post-52422876357329762032008-07-08T17:28:00.002-05:002008-07-08T17:32:43.939-05:00

We are headed back to the CP Center in 2 weeks. Since Logen's EEG came back positive with seizures, the neuro wants to see him. As of now, we've been given liquid valium and were told to to give it(in a suppository form) and call 911 if any seizure occuring lasted 5 minutes or longer. Not sure if the laptop will make the trip with us, but i'll certainly be updating when we get home. We are

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com4tag:blogger.com,1999:blog-5265513914132127243.post-873963658896994012008-07-08T02:50:00.003-05:002008-07-08T03:06:08.172-05:00

lol finally got my invite and I am so glad I can finally post here!!! Nicholas is doing pretty good but the muscles in his legs are starting to get really tight and sore, this morning when he woke up he couldn't even bend his legs they were locked up so bad. I am still waiting to get the appointment to get his legs recasted for braces but no one has phoned me back, I swear as soon as I find out

SDnoreply@blogger.com3tag:blogger.com,1999:blog-5265513914132127243.post-71818868836514921772008-07-07T23:13:00.002-05:002008-07-07T23:16:09.693-05:00

Hey everybody that's here... not sure who yet... I can't post on the OBBC still, so this is my lifeline to you guys...Sheila and I were wondering who was still up to meeting up at the end of July?? We're looking at a beach meet up maybe, or elsewhere if that works for others.... maybe an overnight with or without kids??Let us know!!Ellen :)

ellen :)http://www.blogger.com/profile/00430928372919539591noreply@blogger.com2tag:blogger.com,1999:blog-5265513914132127243.post-49417309514179280932008-07-01T22:34:00.002-05:002008-07-01T22:35:41.082-05:00

Don't forget we've hit July and so we start over on the trivia game. Sorry so late in the day!http://www.funtrivia.com/private/main.cfm?tid=69015

Dawnhttp://www.blogger.com/profile/14600361913851978373noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-52474101874817606152008-07-01T09:03:00.002-05:002008-07-01T09:08:52.363-05:00

Hey guys.... just wanted to let you know -> I have several pictures in my inbox waiting to be made into the side pictures. Each one takes me around 30 minutes (some longer, I had major issues with Hannah's picture and worked on it for like 2 hours!). I promise if you have emailed me a picture, I'll make you one soon! Might take me a bit to complete them all :)BTW-> Logen had a seizure, not a new

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com1tag:blogger.com,1999:blog-5265513914132127243.post-87278194500581966362008-06-27T15:02:00.002-05:002008-12-10T13:35:14.865-06:00

My oldest "baby" graduated from 5th grade on Tuesday. So bittersweet! It seems like yesterday that he was starting Kindergarten! :( They grow up WAY too fast, people!! Enjoy the little ones while they are little! :)

ellen :)http://www.blogger.com/profile/00430928372919539591noreply@blogger.com9tag:blogger.com,1999:blog-5265513914132127243.post-67722942636714868562008-06-25T09:06:00.003-05:002008-06-25T09:09:35.815-05:00

I added the map (Thanks for the idea Melinda!) to the bottom of our blog- don't forget to add where you are. If you have gotten an invite through email, you can start posting here. If you have not, it's b/c I have not gotten your email addy to add you. Also, I have only gotten a few pictures from Carrie, Trina, and Kara- if you'd like your kiddos (and your) pic on the sides of the blog--- please

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com5tag:blogger.com,1999:blog-5265513914132127243.post-24272815447311138372008-06-25T08:59:00.001-05:002008-06-25T09:01:53.579-05:00

A meeting was held quite far from Earth!It's time again for another birth.Said the Angels to the LORD above,This Special Child will need much love.His progess may be very slow,Accomplishments he may not show.And he'll require extra careFrom the folks he meets down there.He may not run or laugh or play,His thought may seem quite far away,In many ways he won't adapt,And he'll be know as

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com0tag:blogger.com,1999:blog-5265513914132127243.post-76043569114299632752008-06-20T08:23:00.001-05:002008-06-20T11:16:52.778-05:00

Hey Guys!!! What do you think so far?

* ~ *Jessica* ~ *http://www.blogger.com/profile/04624325345353463566noreply@blogger.com21